When I last wrote, I was off to London for my GON injection. The day went well, transport arrived and even got me there early which is a rare occurence. I got to see some familiar faces on the day unit and some new ones as well. I'm a bit of a veteran now when it comes to GON's so the nurse had me explaining it all to the new patients. I hope I didn't put them off! The injection itself also went smoothly and I only had a little wait for transport to come and take me home.
The next day not only did I feel sore after the injection but one of my carers came in to tell me she was leaving there and then. I went into a bit of a panic as this carer was meant to be looking after my cats while I was in hopsital, was going to visit and was also going to look after the cats again while I'm on holiday. The day was spent making various phone calls and getting stuff sorted. I'm all organised now and my other carer is going to do some extra hours but it was something I didn't need. Days like that make you think 'if only I could manage without help'.
Since then although the hemicrania has gone for now, the migraine is still very bad so I've not really been doing much. I go in on Monday for the DHE and although I'm always a bit apprehnesive I'm rather pleased to know that by Monday night all the pain should have gone!
It has been a bad week for PostPals as we lost 3 little girls in the space of a week. Two of them had neuroblastoma, which has claimed the lives of the majority of children that we have lost. I don't know how it can be classed as a rare cancer. It's hard when we lose children as I feel so much for the families and it reminds me so much of when we lost Kerry.
There was some good news. Alice got her wish granted and got to meet Cesar Milan. I'm more of a cat person than a dog person but I was rather jealous when I saw his photo! Her and her family so deserbed a treat and I'm so glad that Postpals managed to pull it off.
I've got nothing really planned for the next few days and am just getting things organised for Monday. I hope they send a big ambulance as I've got everything bar the kitchen sink! I'm going to try and update each day while I'm in as I hope it will take my mind off the feeling sick and stomach cramps and give me something to do.
Showing posts with label Postpals. Show all posts
Showing posts with label Postpals. Show all posts
Thursday, 25 March 2010
Monday, 15 February 2010
About me
I thought I'd write a bit about me but have decided to divide it into a post on the health side of things and this post which will be about me and the things I like doing etc.
I live in a bungalow in a small and friendly village in North Hertfordshire. At the moment, I share it with three very spoilt cats. I say at the moment because unfortunately I took my boy cat, Ollie who is 15, to the vet today and he is going to be put to sleep on Wednesday. He has bad arthritis and various other problems so this is the kindest thing for him. I'm going to spoil him rotten though with all his favourite treats. My other two cats are girls and are 17 and 10. They are all great company and love cuddles!
My parents live nearby as does my brother. I did have a younger sister, Kerry, but she died 18 months ago. She had Downs syndrome but was extremely lovable and the life and soul of the party. She is very missed and I try and visit her grave as often as a I can.
I went to Uni in Stoke a bit later than most but had a great time and came away with a degree in Applied Social Studies. Since then I've done various online courses and a few teaching courses at the local college. I now volunteer two mornings a week at the college as an adult numeracy learner support worker. The title makes it sounder posher than it is! I basically work with adults who have not learnt basic numeracy skills for various reasons such as learning disabilities, illness, teenage pregnancy, immigration etc. The class is taken by another tutor and I then sit and work with those who need extra support. It is challenging but very rewardable and enjoyable.
I also do quite a bit of work for Postpals. Postpals was set up over five years ago by a group of people with ME and through their website encourages people to send cards, lettters and presents to children with long term and life limiting illnesses. I joined just after it started and as well as sending homemade cards to the children, have also helped out with various jobs and admin tasks. I really enjoy getting to know the children and their families and it helps in a way to take my mind off my own illness and to focus on something else.
My main hobby is making cards. I started by just making a few for the pals but since I've got more interested in it and learnt more, I've started making more and more complicated ones. I also enjoy playing on the Wii particularly WiiFit plus, reading, watching television and surfing the internet. When the weather is good I also enjoy sailing. I'm part of a local Sailability and sail either an Access or Challenger. It's great fun and I enjoy the freedom.
That's it really about me, I'll fill you in on the medical side of stuff in the next post.
I live in a bungalow in a small and friendly village in North Hertfordshire. At the moment, I share it with three very spoilt cats. I say at the moment because unfortunately I took my boy cat, Ollie who is 15, to the vet today and he is going to be put to sleep on Wednesday. He has bad arthritis and various other problems so this is the kindest thing for him. I'm going to spoil him rotten though with all his favourite treats. My other two cats are girls and are 17 and 10. They are all great company and love cuddles!
My parents live nearby as does my brother. I did have a younger sister, Kerry, but she died 18 months ago. She had Downs syndrome but was extremely lovable and the life and soul of the party. She is very missed and I try and visit her grave as often as a I can.
I went to Uni in Stoke a bit later than most but had a great time and came away with a degree in Applied Social Studies. Since then I've done various online courses and a few teaching courses at the local college. I now volunteer two mornings a week at the college as an adult numeracy learner support worker. The title makes it sounder posher than it is! I basically work with adults who have not learnt basic numeracy skills for various reasons such as learning disabilities, illness, teenage pregnancy, immigration etc. The class is taken by another tutor and I then sit and work with those who need extra support. It is challenging but very rewardable and enjoyable.
I also do quite a bit of work for Postpals. Postpals was set up over five years ago by a group of people with ME and through their website encourages people to send cards, lettters and presents to children with long term and life limiting illnesses. I joined just after it started and as well as sending homemade cards to the children, have also helped out with various jobs and admin tasks. I really enjoy getting to know the children and their families and it helps in a way to take my mind off my own illness and to focus on something else.
My main hobby is making cards. I started by just making a few for the pals but since I've got more interested in it and learnt more, I've started making more and more complicated ones. I also enjoy playing on the Wii particularly WiiFit plus, reading, watching television and surfing the internet. When the weather is good I also enjoy sailing. I'm part of a local Sailability and sail either an Access or Challenger. It's great fun and I enjoy the freedom.
That's it really about me, I'll fill you in on the medical side of stuff in the next post.
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